A Espanya hi ha uns dos milions de persones afectades per malalties neurogen\u00e8tiques. El redu\u00eft nombre de pacients i la complexitat d\u2019aquestes patologies fan necessari un abordatge multidisciplinari entre professionals del sistema nervi\u00f3s de base gen\u00e8tica, neur\u00f2legs, neuropediatres, etc. Amb l\u2019objectiu d\u2019integrar aquests professionals en una mateixa entitat ha nascut l\u2019Associaci\u00f3 Neurogen\u00e8tica Espanyola. Aquesta integraci\u00f3 t\u00e9 l\u2019objectiu de beneficiar directamentels pacients i les seves fam\u00edlies, aix\u00ed com donar un nou impuls a la recerca. <\/p>\n
La presentaci\u00f3 de Neurogenes va tenir lloc el 30 de mar\u00e7 al Instituto de Salud Carlos III. Al darrere del naixement de Neurogenes es troben el cap de servei de neurologia de l\u2019Hospital Ram\u00f3n y Cajal, Justo Garc\u00eda de Y\u00e9benes,<\/p>\n
i el director del Centre de Diagn\u00f2stic Molecular i investigador del grup de recerca de Malalties neurometab\u00f2liques i neurogen\u00e8tica de l\u2019IDIBELL, V\u00edctor Volpini, president i vicepresident de la nova associaci\u00f3, respectivament. Tots dos han destacat la vocaci\u00f3 translacional de la nova societat.<\/p>\n","protected":false},"excerpt":{"rendered":"
A Espanya hi ha uns dos milions de persones afectades per malalties neurogen\u00e8tiques. El redu\u00eft nombre de pacients i la complexitat d\u2019aquestes patologies fan necessari un abordatge multidisciplinari entre professionals del sistema nervi\u00f3s de base gen\u00e8tica, neur\u00f2legs, neuropediatres, etc. Amb l\u2019objectiu d\u2019integrar aquests professionals en una mateixa entitat ha nascut l\u2019Associaci\u00f3 Neurogen\u00e8tica Espanyola. Aquesta integraci\u00f3 […]<\/p>\n","protected":false},"author":6,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"footnotes":""},"categories":[1],"tags":[],"publishpress_future_action":{"enabled":false,"date":"2024-05-12 08:35:36","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"_links":{"self":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/9668"}],"collection":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/comments?post=9668"}],"version-history":[{"count":0,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/9668\/revisions"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media?parent=9668"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/categories?post=9668"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/tags?post=9668"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}