{"id":7907,"date":"2016-10-20T00:00:00","date_gmt":"2016-10-19T22:00:00","guid":{"rendered":"https:\/\/idibell.cat\/blog\/2016\/10\/20\/grupo-temporing-mecenes-de-la-investigacio-de-lela\/"},"modified":"2020-05-13T19:47:04","modified_gmt":"2020-05-13T17:47:04","slug":"grupo-temporing-mecenes-de-la-investigacio-de-lela","status":"publish","type":"post","link":"https:\/\/idibell.cat\/2016\/10\/grupo-temporing-mecenes-de-la-investigacio-de-lela\/","title":{"rendered":"Grupo T\u00e9mporing, mecenes de la investigaci\u00f3 de l\u2019ELA"},"content":{"rendered":"
L\u2019IDIBELL i l\u2019empresa Grupo T\u00e9mporing, amb seu central a Barcelona, han arribat a un acord de mecenatge per contribuir i impulsar el finan\u00e7ament de la recerca sobre l\u2019esclerosi lateral amiotr\u00f2fica (ELA)<\/strong>.T\u00e9mporing \u00e9s una de les m\u00e9s empreses de treball temporal m\u00e9s prestigioses del mercat espa\u00f1ol, avalada per quinze anys d\u2019experi\u00e8ncia, i la integren m\u00e9s de cent-quaranta professionals en recursos humans. La seva missi\u00f3 \u00e9s oferir als seus clients solucions integrals en recursos humans, procurant-los la incorporaci\u00f3 de col\u00b7laboradors que contribueixin a la seva competitivitat, rentabilitat i creixement, tot respectant el seu codi de valors. <\/p>\n L\u2019import econ\u00f2mic de la donaci\u00f3, que ascendeix a 1200 euros mensuals, ser\u00e0 administrat per la Dra. M\u00f2nica Povedano, investigadora del grup de Malalties Neurol\u00f2giques i Neurogen\u00e8tica de l\u2019IDIBELL, que lidera un projecte de recerca sobre l\u2019ELA. L’esclerosi lateral amiotr\u00f2fica \u00e9s una malaltia neurodegenerativa amb baixa incid\u00e8ncia i prevalen\u00e7a que ataca les c\u00e8l\u00b7lules nervioses encarregades de controlar els m\u00fasculs voluntaris. En l’ELA, les neurones motores degeneren o moren i deixen d’enviar missatges als m\u00fasculs, que acaben afeblint-se i atrofiant-se. Els pacients d\u2019aquesta malaltia perden la for\u00e7a i la capacitat de moure els bra\u00e7os, les cames i el cos. Quan fallen els m\u00fasculs del diafragma i de la paret tor\u00e0cica, els pacients perden la capacitat de respirar sense un ventilador o respirador artificial. La majoria de les persones amb ELA moren de fallada respirat\u00f2ria. <\/p>\n La Unitat funcional de motoneurona de l’Hospital Universitari de Bellvitge, on la Dra. Povedano hi exerceix una rellevant tasca assistencial com a metge facultativa, visita un elevat n\u00famero de pacients, procedents de diferents \u00e0rees del pa\u00eds. Malgrat aix\u00f2, en el moment actual no es coneix la prevalen\u00e7a de la malaltia al nostre territori ni la distribuci\u00f3 geogr\u00e0fica dels pacients. Els diners procedents d\u2019aquest acord de mecenatge s’utilitzaran per con\u00e8ixer la distribuci\u00f3 geogr\u00e0fica dels malalts d\u2019ELA, aix\u00ed com per valorar les caracter\u00edstiques cl\u00edniques i fenot\u00edpiques dels pacients que han estat seguits a la unitat en els \u00faltims 20 anys, amb la finalitat de descobrir si variacions d’aquestes dades poden estar relacionades amb la influ\u00e8ncia de factors ambientals. L\u2019estudi en q\u00fcesti\u00f3 es du a terme en col\u00b7laboraci\u00f3 amb estadistes en salut de la Universitat de Girona. <\/p>\n L\u2019acord recentment assolit \u00e9s un dels fruits de la posada en funcionament a la nostra instituci\u00f3 d\u2019una estrat\u00e8gia de captaci\u00f3 activa de fons \u2013fundraising<\/em>– per a la recerca. En altres l\u00ednies d\u2019actuaci\u00f3, aquesta estrat\u00e8gia, iniciada a principis de 2016, ja ha aconseguit canalitzar ajudes a diversos projectes d\u2019investigaci\u00f3 mitjan\u00e7ant l\u2019organitzaci\u00f3 de campanyes de sensibilitzaci\u00f3 i solidaritat amb la recerca vinculades a activitats esportives com la Cursa Nocturna de L\u2019Hospitalet<\/a>, o la Marat\u00f3 del Mediterrani, o de caire cultural, com una funci\u00f3 de teatre solidari<\/a> amb els Voluntaris de La Caixa, o els concerts solidaris de Nadal<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":" acord de mecenatge per contribuir i impulsar el finan\u00e7ament de la recerca sobre l\u2019esclerosi lateral amiotr\u00f2fica (ELA)<\/p>\n","protected":false},"author":6,"featured_media":7908,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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