{"id":7834,"date":"2017-02-27T00:00:00","date_gmt":"2017-02-26T23:00:00","guid":{"rendered":"https:\/\/idibell.cat\/blog\/2017\/02\/27\/zumba-solidaria-per-la-sindrome-de-rett\/"},"modified":"2023-11-22T15:50:17","modified_gmt":"2023-11-22T14:50:17","slug":"zumba-solidaria-per-la-sindrome-de-rett","status":"publish","type":"post","link":"https:\/\/idibell.cat\/2017\/02\/zumba-solidaria-per-la-sindrome-de-rett\/","title":{"rendered":"Zumba Solid\u00e0ria per la S\u00edndrome de Rett"},"content":{"rendered":"

Mou-te per la recerca! Amb aquest lema, el passat dissabte 11 de mar\u00e7 a les 12:30h, el POLIESPORTIU MUNICIPAL BELLVITGE \u201cSergio Manzano\u201d acoll\u00ed una MASTERCLASS DE ZUMBA SOLID\u00c0RIA per recaptar fons per a la investigaci\u00f3 de la s\u00edndrome de Rett, una malaltia que afecta 3.000 nenes a tot Espanya, i que representa la primera causa de retard mental en la dona. L’activitat recoll\u00ed un total de mil euros en donatius voluntaris, i compt\u00e0 amb la participaci\u00f3 de prop de 200 persones i amb la pres\u00e8ncia de N\u00faria Marin, alcaldessa de L’Hospitalet, i de Christian Alc\u00e1zar, tinent d’alcalde de la ciutat.<\/p>\n

Coincidint amb la setmana de la commemoraci\u00f3 del Dia Internacional de la Dona, l\u2019Institut d\u2019Investigaci\u00f3 Biom\u00e8dica de Bellvitge (IDIBELL), el bloc ElRetto (Bloc d’informaci\u00f3 i suport a la recerca sobre la s\u00edndrome de Rett) i l\u2019Associaci\u00f3 Catalana de la S\u00edndrome de Rett, s’aplegaren per sumar esfor\u00e7os per una malaltia que provoca, en les pacients que la pateixen, p\u00e8rdua de l’\u00fas de les mans, p\u00e8rdua del llenguatge i, molt sovint, epil\u00e8psia. La iniciativa reb\u00e9, des del primer moment, el comprom\u00eds i el suport de l\u2019Ajuntament de L\u2019Hospitalet de Llobregat i de l\u2019Associaci\u00f3 Esportiva Bellsport.<\/p>\n

La s\u00edndrome de Rett \u00e9s una malaltia cong\u00e8nita vinculada al cromosoma X. Afecta 1 de cada 10.000 dones i provoca una afectaci\u00f3 neurol\u00f2gica que es manifesta, generalment, durant el segon any de vida. A partir de llavors, les afectades esdevenen dependents dels altres per a la resta de la seva vida. La s\u00edndrome de Rett es podr\u00e0 curar, per\u00f2 a dia d\u2019avui calen recursos econ\u00f2mics que assegurin que es podran dur a terme els projectes de recerca biom\u00e8dica que han de permetre identificar dianes moleculars per al seu tractament. En aquest sentit, l\u2019IDIBELL \u00e9s un institut l\u00edder en la recerca d\u2019aquesta malaltia minorit\u00e0ria, gr\u00e0cies a la tasca d\u2019un equip de cient\u00edfics dirigits pel Dr. Manel Esteller, la Dra. S\u00f2nia Guil i el Dr. Raul Delgado.<\/p>\n","protected":false},"excerpt":{"rendered":"

Mou-te per la recerca! Amb aquest lema, el passat dissabte 11 de mar\u00e7 a les 12:30h, el POLIESPORTIU MUNICIPAL BELLVITGE \u201cSergio Manzano\u201d acoll\u00ed una MASTERCLASS DE ZUMBA SOLID\u00c0RIA per recaptar fons per a la investigaci\u00f3 de la s\u00edndrome de Rett, una malaltia que afecta 3.000 nenes a tot Espanya, i que representa la primera causa […]<\/p>\n","protected":false},"author":6,"featured_media":10688,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1,491],"tags":[],"class_list":["post-7834","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categorizar","category-divulgacio-i-educacio"],"publishpress_future_action":{"enabled":false,"date":"2025-01-29 12:23:57","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/7834","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/comments?post=7834"}],"version-history":[{"count":1,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/7834\/revisions"}],"predecessor-version":[{"id":24624,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/7834\/revisions\/24624"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media\/10688"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media?parent=7834"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/categories?post=7834"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/tags?post=7834"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}