{"id":7462,"date":"2019-06-12T00:00:00","date_gmt":"2019-06-11T22:00:00","guid":{"rendered":"https:\/\/idibell.cat\/blog\/2019\/06\/12\/nou-impuls-solidari-per-investigar-les-grinpaties\/"},"modified":"2020-05-28T11:46:55","modified_gmt":"2020-05-28T09:46:55","slug":"nou-impuls-solidari-per-investigar-les-grinpaties","status":"publish","type":"post","link":"https:\/\/idibell.cat\/2019\/06\/nou-impuls-solidari-per-investigar-les-grinpaties\/","title":{"rendered":"Nou impuls solidari per investigar les GRINpaties"},"content":{"rendered":"<p style=\"margin: 0cm 0cm 0.0001pt; text-align: justify;\"><span style=\"font-size:12px;\"><span style=\"background:white\"><span style=\"font-family:\"Times New Roman\",serif\"><span lang=\"CA\"><span style=\"font-family:\"Calibri\",sans-serif\">El CEIP Fray Alonso Fern\u00e1ndez de la petita localitat de Malpartida de Plasencia (C\u00e1ceres), juntament amb l\u2019AMPA del centre, ha impulsat una activitat solid\u00e0ria per contribuir a l\u2019estudi de les GRINpaties. El centre educatiu organitz\u00e0 un &#8220;bocadillo solidario&#8221; amb la finalitat de recaptar fons per la recerca contra aquestes malalties, una tasca que a l\u2019IDIBELL du a terme el grup del Dr. Xavier Altafaj.<\/span><\/span><\/span><\/span><\/span><\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt; text-align: justify;\">\u00a0<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt; text-align: justify;\"><span style=\"font-size:12px;\"><span style=\"background:white\"><span style=\"font-family:\"Times New Roman\",serif\"><span lang=\"CA\"><span style=\"font-family:\"Calibri\",sans-serif\">Gr\u00e0cies a aquest esdeveniment, es recol\u00b7lectaren uns 3.107 \u20ac, que seran destinats a la investigaci\u00f3 d&#8217;aquesta malaltia minorit\u00e0ria. Al seu torn, la Asociaci\u00f3n Cultural San Crist\u00f3bal, de la mateixa poblaci\u00f3, tamb\u00e9 s\u2019ha sumat a la causa i ha donat un total de 500 \u20ac, que cal afegir als que ja havien recol\u00b7lectat pares i alumnes.<\/span><\/span><\/span><\/span><\/span><\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt; text-align: justify;\">\u00a0<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt; text-align: justify;\"><span style=\"font-size:12px;\"><span style=\"background:white\"><span style=\"font-family:\"Times New Roman\",serif\"><span lang=\"CA\"><span style=\"font-family:\"Calibri\",sans-serif\">Les GRINpaties s\u00f3n un conjunt de condicions neurol\u00f2giques que alteren el desenvolupament del cervell, causant greus problemes de discapacitat intel\u00b7lectual, hipotonia i epil\u00e8psia, i que sol afectar a pacients pedi\u00e0trics. L\u2019aportaci\u00f3 d\u2019aquests fons solidaris contribuir\u00e0 a accelerar el diagn\u00f2stic molecular i l\u2019inici d\u2019un tractament personalitzat per a aquests pacients, amb la finalitat d\u2019atenuar de manera significativa les conseq\u00fc\u00e8ncies negatives de la malaltia.<\/span><\/span><\/span><\/span><\/span><\/p>\n<p style=\"margin: 4.5pt 0cm; text-align: justify;\">\u00a0<\/p>\n<p style=\"margin: 4.5pt 0cm; text-align: justify;\"><span style=\"font-size:12px;\"><span style=\"background:white\"><span style=\"font-family:\"Times New Roman\",serif\"><span lang=\"CA\"><span style=\"font-family:\"Calibri\",sans-serif\">Els equips del Dr. Altafaj i del Dr. <\/span><\/span><span style=\"background:white\"><span style=\"font-family:\"Calibri\",sans-serif\">David Soto del Cerro, de la Universitat de Barcelona, tenen activa una <\/span><\/span><span lang=\"CA\"><span style=\"font-family:\"Calibri\",sans-serif\">campanya de crowdfunding que recull fons per a la investigaci\u00f3 de les GRINpaties: <\/span><\/span><span class=\"MsoHyperlink\" style=\"color:blue\"><span style=\"text-decoration:underline\"><span lang=\"CA\"><span style=\"font-family:\"Calibri\",sans-serif\"><a href=\"https:\/\/l.facebook.com\/l.php?u=https%3A%2F%2Fbit.ly%2F2KSrWqo%3Ffbclid%3DIwAR1rxsX683EH2honagIcfpaqVajrH8CWDV2RdydaffGzRlrx7E3OyOC_FAc&#038;h=AT29xz69U83pB2pJ8PH7sNV4yTHmzQ4nt2ELFlsAhAYvRa2gI2_gwOGTXnGimE1TkOeUI-ZPo_EjG_4CBp5yYZSZtIagmZ8IMn2RXaPtH8lHETd0B2xNo8BBzNXAI4Hz6sobBc6ucHOoHj2XgGfSVpOw5WR857YETSFIKnicM-Ev-AJt2MJBcDSNvwBjxuIc_L13R9KpmZDqa2SuRO6gbe4VXj3SFO9CivhEWmEAAC4_a7Uv_mOuAIbUsme8XJHdl5RZBpBDPLurjQcWCK_eRYnVAeIlhB1v5H8Zwa8b87LdA3DFViSglGtQcEu0t8ebDDefCt6hUFLWx9GdjpU7slsjKTf_aPAJm3bjzMOiAPqVUq_sncnWqk62P1wbVgc4fIbDHzVUD8oGL8j4P0WUzNCFgQFAX5fa9DgWVZgsdGo42mLyCkrJoACTx7bRH5sXygG5DCSYarI1q9nRbJFd5wTWnqpCkxQab_dyLSWlnZdhkDBRQ-YEpO-Kw7SO_0wAl_383Og1yyfTpsk9ifvXjWA4DqRZ5mM4eYrk2mQOd2qxyUMBa49Bk-xHXPmyJ50OMVGOLQbFRE-0VRETFTij3AQj3Bxa_v5V6Np4ag\" style=\"color:blue; text-decoration:underline\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/bit.ly\/2KSrWqo<\/a><\/span><\/span><\/span><\/span><\/span><\/span><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>El CEIP Fray Alonso Fern\u00e1ndez de la petita localitat de Malpartida de Plasencia (C\u00e1ceres), juntament amb l\u2019AMPA del centre, ha impulsat una activitat solid\u00e0ria per contribuir a l\u2019estudi de les GRINpaties. El centre educatiu organitz\u00e0 un &#8220;bocadillo solidario&#8221; amb la finalitat de recaptar fons per la recerca contra aquestes malalties, una tasca que a l\u2019IDIBELL [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":10479,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-gradient":""}},"footnotes":""},"categories":[340,344],"tags":[],"publishpress_future_action":{"enabled":false,"date":"2024-05-12 05:47:45","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"_links":{"self":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/7462"}],"collection":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/comments?post=7462"}],"version-history":[{"count":0,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/7462\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media\/10479"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media?parent=7462"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/categories?post=7462"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/tags?post=7462"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}