L\u2019Agrupaci\u00f3 Cultural i Esportiva de Bombers de Barcelona, organitza la VIII Milla N\u00e0utica Solid\u00e0ria Bombers de Barcelona, que enguany recaptar\u00e0 fons per l\u2019Associaci\u00f3 Espanyola de Linfangioleiomiomatosis (AELAM). L\u2019objectiu \u00e9s continuar avan\u00e7ant en la recerca per millorar el diagn\u00f2stic i trobar un tractament per a aquesta malaltia minorit\u00e0ria que avui dia no t\u00e9 cura.<\/p>\n
La Linfangioleiomiomatosis (LAM) \u00e9s una malaltia minorit\u00e0ria d\u2019origen desconegut i de diagn\u00f2stic dif\u00edcil que principalment afecta dones en edat f\u00e8rtil. Es caracteritza per causar un creixement an\u00f2mal de c\u00e8l\u00b7lules als pulmons, generant una patologia que destrueix l\u2019\u00f2rgan amb progressi\u00f3 lenta per\u00f2 continuada. La LAM no t\u00e9 cura, per\u00f2 existeix un f\u00e0rmac anomenat rapamicina que, en la majoria de casos, permet alentir el progr\u00e9s de la malaltia. Si la medicaci\u00f3 no t\u00e9 \u00e8xit, cal rec\u00f3rrer a un trasplantament complet de pulmons.<\/p>\n
L\u2019Associaci\u00f3 AELAM dona suport a la recerca en LAM<\/strong> liderada pel Dr.<\/strong> Miquel \u00c0ngel Pujana<\/strong>, investigador principal del grup de recerca en C\u00e0ncer de Mama i LAM de l\u2019IDIBELL, IDIBGI i l\u2019Institut Catal\u00e0 d\u2019Oncologia (ICO). \u201cLa nostra recerca busca identificar biomarcadors que facilitin el diagn\u00f2stic no invasiu d\u2019aquesta malaltia minorit\u00e0ria\u201d, afirma el Dr. Pujana, que afegeix: \u201cen paral\u00b7lel, tamb\u00e9 investiguem per trobar ter\u00e0pies dirigides que permetin eliminar per complert les c\u00e8l\u00b7lules LAM en les pacients\u201d.<\/p>\n Ja fa prop de 10 anys que l\u2019AELAM col\u00b7labora amb aquest grup de recerca<\/strong>: \u201cEstem profundament agra\u00efts pel suport continu de l’Associaci\u00f3 AELAM a la nostra recerca en LAM. La implicaci\u00f3 dels pacients en el finan\u00e7ament i el seu suport a la investigaci\u00f3 s\u00f3n pilars fonamentals que impulsen la translaci\u00f3 dels nostres descobriments cap a avan\u00e7os tangibles en la cura d\u2019aquesta malaltia\u201d, subratlla el Dr. Pujana.<\/p>\n Quatre categories de la Milla 2024<\/strong><\/p>\n La VIII Milla N\u00e0utica Solid\u00e0ria Bombers de Barcelona \u00e9s una travessa aqu\u00e0tica no competitiva que se celebrar\u00e0 el diumenge 30 de juny a les 10:00 h a la Platja del Bogatell, al costat de la Base N\u00e0utica. Els participants podran escollir entre quatre dist\u00e0ncies: Mitja Milla (926 metres), Una Milla (1.852 metres), Dues Milles (3.704 metres) i Tres Milles (5.556 metres), amb un temps m\u00e0xim de 2 hores per completar la prova. Les inscripcions es poden fer a la web de l\u2019Agrupaci\u00f3 Cultural i Esportiva dels Bombers de Barcelona: https:\/\/www.acebombersbcn.cat\/viii-milla-nautica-solidaria-bombers-de-barcelona-2\/<\/a><\/p>\n El preu d’inscripci\u00f3 \u00e9s de 15\u20ac, destinant-se els fons recaptats a l’Associaci\u00f3 Espanyola de Linfangioleiomiomatosis (AELAM). Al final de la travessa, es realitzar\u00e0 un sorteig de material i experi\u00e8ncies ofertes pels patrocinadors de la milla.<\/p>\n","protected":false},"excerpt":{"rendered":" Es tracta de la VIII edici\u00f3 de la Milla N\u00e0utica Solid\u00e0ria Bombers de Barcelona, que se celebrar\u00e0 diumenge 30 de juny a la platja de Bogatell (Barcelona).<\/p>\n","protected":false},"author":8,"featured_media":25756,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[332,390,446,447,452],"tags":[],"publishpress_future_action":{"enabled":false,"date":"2024-07-08 07:36:43","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"_links":{"self":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/25755"}],"collection":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/comments?post=25755"}],"version-history":[{"count":1,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/25755\/revisions"}],"predecessor-version":[{"id":25757,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/25755\/revisions\/25757"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media\/25756"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media?parent=25755"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/categories?post=25755"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/tags?post=25755"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}