{"id":24002,"date":"2023-07-12T14:48:32","date_gmt":"2023-07-12T12:48:32","guid":{"rendered":"https:\/\/idibell.cat\/?p=24002"},"modified":"2023-07-12T14:48:32","modified_gmt":"2023-07-12T12:48:32","slug":"barcelona-esdeve-capital-cientifica-europea-de-lela-gracies-al-congres-internacional-encals","status":"publish","type":"post","link":"https:\/\/idibell.cat\/2023\/07\/barcelona-esdeve-capital-cientifica-europea-de-lela-gracies-al-congres-internacional-encals\/","title":{"rendered":"Barcelona esdev\u00e9 capital cient\u00edfica europea de l\u2019ELA gr\u00e0cies al Congr\u00e9s Internacional ENCALS"},"content":{"rendered":"<p>850 participants membres de grups de recerca i especialistes m\u00e8dics en Esclerosi Lateral Amiotr\u00f2fica (ELA) d\u2019arreu del m\u00f3n es reuneixen a Barcelona del 12 al 14 de juliol al Congr\u00e9s Cient\u00edfic Internacional de la xarxa europea d\u2019ELA (<a href=\"https:\/\/www.encals.eu\/\">ENCALS<\/a>) 2023. \u00c9s la primera vegada que aquesta reuni\u00f3 se celebra a Barcelona i a l\u2019Estat espanyol, el que suposa tot un reconeixement a l\u2019experi\u00e8ncia i la capacitat de la recerca al voltant de l\u2019ELA que aglutina la capital catalana.<\/p>\n<p>De fet, la responsable local del congr\u00e9s \u00e9s la Dra. M\u00f2nica Povedano, coordinadora de la Unitat Funcional de Malaltia de Motoneurona de l\u2019Hospital Universitari de Bellvitge (HUB) i investigadora principal del grup d\u2019investigaci\u00f3 en <a href=\"https:\/\/idibell.cat\/recerca\/area-de-neurociencies\/programa-de-neurociencies\/malalties-neurologiques-i-neurogenetica\/\">Malalties Neurol\u00f2giques i Neurogen\u00e8tica<\/a> de l\u2019Institut d\u2019Investigaci\u00f3 Biom\u00e8dica de Bellvitge (IDIBELL), referent en ELA a l\u2019Estat i Europa, i membre executiu de la junta de govern de l\u2019ENCALS.<\/p>\n<p>La cerim\u00f2nia d\u2019apertura ha comptat amb el conseller de Sanitat de la Generalitat de Catalunya, Manel Balcells, i representants d\u2019entitats que donen suport a la recerca en ELA com la Fundaci\u00f3 Luz\u00f3n, la Fundaci\u00f3 LaCaixa i la Fundaci\u00f3 Catalana d\u2019ELA Miquel Valls. El congr\u00e9s est\u00e0 apadrinat per Juan Carlos Unzu\u00e9, exjugador del Futbol Club Barcelona, mecenes i pacient afectat per l\u2019ELA.<\/p>\n<p>\u201c\u00c9s un congr\u00e9s molt rellevant perqu\u00e8 aglutina tot el coneixement de la recerca b\u00e0sica del continent en la malaltia de motoneurona\u201d, en paraules de la Dra. Povedano. Entre els temes que s\u2019abordaran en aquesta edici\u00f3 hi ha la regulaci\u00f3 farmac\u00e8utica i les difer\u00e8ncies a Europa respecte als f\u00e0rmacs aprovats a Estats Units i Canad\u00e0, a m\u00e9s de promoure l\u2019intercanvi intel\u00b7lectual i explorar el treball en xarxa.<\/p>\n<p>Un altre fet diferencial \u00e9s que des del congr\u00e9s de Barcelona s\u2019obren les portes a altres regions del m\u00f3n, com Sudam\u00e8rica i \u00c0frica. \u201cS\u2019ha vist la rellev\u00e0ncia dels ancestres i de la nostra c\u00e0rrega gen\u00e8tica en el risc de desenvolupar una malaltia neurodegenerativa. Europa es transforma en l\u2019eix a partir del qual es vertebra la recerca, m\u00e9s enll\u00e0 dels pa\u00efsos desenvolupats, i comen\u00e7a aquest treball en xarxa amb Sudam\u00e8rica i amb pa\u00efsos africans, com ara Eti\u00f2pia\u201d, tal i com ha explicat l\u2019especialista de l\u2019Hospital de Bellvitge i investigadora de l\u2019IDIBELL.<\/p>\n<p>La celebraci\u00f3 d\u2019ENCALS a Barcelona ha marcat un r\u00e8cord d\u2019assist\u00e8ncia en els 21 anys d\u2019hist\u00f2ria del congr\u00e9s. \u201cEl nostre objectiu \u00e9s reunir la comunitat cient\u00edfica i m\u00e8dica per fomentar la col\u00b7laboraci\u00f3 i accelerar els aven\u00e7os en el diagn\u00f2stic, tractament i cura dels pacients amb ELA\u201d, tal i com ha destacat la Dra. Orla Hardiman, neur\u00f2loga i investigadora del Trinity College de Dublin, i codirectora de la junta executiva d\u2019ENCALS.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>L\u2019aposta de Bellvitge per la recerca en ELA <\/strong><\/p>\n<p>L\u2019esclerosi lateral amiotr\u00f2fica (ELA) \u00e9s una\u00a0malaltia neurodegenerativa\u00a0que afecta les neurones motores del cervell, tronc encef\u00e0lic i medul\u00b7la espinal \u2013 c\u00e8l\u00b7lules encarregades de transmetre l\u2019ordre del moviment voluntari del cervell als m\u00fasculs. Aix\u00f2 provoca que el cervell perdi la capacitat de controlar el moviment dels m\u00fasculs. En conseq\u00fc\u00e8ncia, les persones que pateixen aquesta malaltia presenten\u00a0atr\u00f2fia muscular\u00a0que avan\u00e7a tot provocant\u00a0par\u00e0lisi progressiva\u00a0i en alguns casos afectant a la capacitat de parla, degluci\u00f3 i respiraci\u00f3.<\/p>\n<p>En aquest \u00e0mbit, el grup de recerca de l\u2019Hospital de Bellvitge i l\u2019IDIBELL t\u00e9 obertes diverses l\u00ednies d\u2019investigaci\u00f3 per trobar marcadors que permetin diagnosticar de forma preco\u00e7 l\u2019ELA i determinar el risc de patir-la. De fet, una de les l\u00ednies de recerca \u00e9s la dels assaigs de f\u00e0rmacs que permetin alentir el progr\u00e9s generatiu de la malaltia.<\/p>\n<p>&nbsp;<\/p>\n<p><em>L\u2019Institut d&#8217;Investigaci\u00f3 Biom\u00e8dica de Bellvitge (IDIBELL) \u00e9s un centre de recerca en biomedicina creat l\u2019any 2004. Est\u00e0 participat per l&#8217;Hospital Universitari de Bellvitge i l\u2019Hospital de Viladecans de l&#8217;Institut Catal\u00e0 de la Salut, l&#8217;Institut Catal\u00e0 d&#8217;Oncologia, la Universitat de Barcelona i l\u2019Ajuntament de l\u2019Hospitalet de Llobregat.<\/em><\/p>\n<p><em>L\u2019IDIBELL \u00e9s membre del Campus d&#8217;Excel\u00b7l\u00e8ncia Internacional de la Universitat de Barcelona HUBc i forma part de la instituci\u00f3 CERCA de la Generalitat de Catalunya. L&#8217;any 2009 es va convertir en un dels cinc primers centres d\u2019investigaci\u00f3 espanyols acreditats com a institut d\u2019investigaci\u00f3 sanit\u00e0ria per l\u2019Instituto de Salud Carlos III. A m\u00e9s, forma part del programa \u201cHR Excellence in Research\u201d de la Uni\u00f3 Europea i \u00e9s membre de EATRIS i REGIC. Des de l\u2019any 2018, l\u2019IDIBELL \u00e9s un Centro Acreditado de la Fundaci\u00f3n Cient\u00edfica AECC (FCAECC).<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La responsable local del congr\u00e9s \u00e9s la Dra. M\u00f2nica Povedano, coordinadora de la Unitat Funcional de Malaltia de Motoneurona de l\u2019Hospital Universitari de Bellvitge (HUB) i investigadora principal del grup d\u2019investigaci\u00f3 en Malalties Neurol\u00f2giques i Neurogen\u00e8tica de l\u2019IDIBELL.<\/p>\n","protected":false},"author":8,"featured_media":24003,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[416,340,457],"tags":[],"class_list":["post-24002","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-malalties-neurologiques-i-neurogenetica","category-neurociencies","category-p-de-neurociencies"],"publishpress_future_action":{"enabled":false,"date":"2025-01-29 09:31:41","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/24002","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/comments?post=24002"}],"version-history":[{"count":1,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/24002\/revisions"}],"predecessor-version":[{"id":24004,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/posts\/24002\/revisions\/24004"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media\/24003"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/media?parent=24002"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/categories?post=24002"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/wp-json\/wp\/v2\/tags?post=24002"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}