{"id":24407,"date":"2024-05-28T11:57:13","date_gmt":"2024-05-28T09:57:13","guid":{"rendered":"https:\/\/idibell.cat\/es\/?p=24407"},"modified":"2024-05-28T11:57:13","modified_gmt":"2024-05-28T09:57:13","slug":"la-viii-milla-nautica-solidaria-de-los-bomberos-de-barcelona-2024-apoyara-la-investigacion-en-la-enfermedad-minoritaria-lam","status":"publish","type":"post","link":"https:\/\/idibell.cat\/es\/2024\/05\/la-viii-milla-nautica-solidaria-de-los-bomberos-de-barcelona-2024-apoyara-la-investigacion-en-la-enfermedad-minoritaria-lam\/","title":{"rendered":"La VIII Milla N\u00e1utica Solidaria de los Bomberos de Barcelona 2024 apoyar\u00e1 la investigaci\u00f3n en la enfermedad minoritaria LAM"},"content":{"rendered":"

La Agrupaci\u00f3n Cultural y Deportiva de Bomberos de Barcelona, organiza la VIII Milla N\u00e1utica Solidaria Bomberos de Barcelona, que este a\u00f1o recaudar\u00e1 fondos para la Asociaci\u00f3n Espa\u00f1ola de Linfangioleiomiomatosis (AELAM). El objetivo es seguir avanzando en la investigaci\u00f3n para mejorar el diagn\u00f3stico y encontrar un tratamiento para esta enfermedad minoritaria que hoy en d\u00eda no tiene cura.<\/p>\n

La Linfangioleiomiomatosis (LAM) es una enfermedad minoritaria de origen desconocido y de diagn\u00f3stico dif\u00edcil que principalmente afecta a mujeres en edad f\u00e9rtil. Se caracteriza por causar un crecimiento an\u00f3malo de c\u00e9lulas en los pulmones, generando una patolog\u00eda que destruye el \u00f3rgano con progresi\u00f3n lenta pero continuada. La LAM no tiene cura, pero existe un f\u00e1rmaco llamado rapamicina que, en la mayor\u00eda de casos, permite\u00a0 ranentizar el progreso de la enfermedad. Si la medicaci\u00f3n no tiene \u00e9xito, hay que recurrir a un trasplante completo de pulmones.<\/p>\n

La Asociaci\u00f3n AELAM apoya la investigaci\u00f3n en LAM<\/strong> liderada por el Dr. Miquel \u00c0ngel Pujana<\/strong>, investigador principal del grupo de investigaci\u00f3n en C\u00e1ncer de Mama y LAM del IDIBELL, IDIBGI y el Instituto Catal\u00e1n de Oncolog\u00eda (ICO). \u00abNuestra investigaci\u00f3n busca identificar biomarcadores que faciliten el diagn\u00f3stico no invasivo de esta enfermedad minoritaria\u00bb, afirma el Dr. Pujana, que a\u00f1ade: \u00aben paralelo, tambi\u00e9n investigamos para encontrar terapias dirigidas que permitan eliminar por completo las c\u00e9lulas LAM en las pacientes\u00bb.<\/p>\n

Ya hace cerca de 10 a\u00f1os que la AELAM colabora con este grupo de investigaci\u00f3n<\/strong>: \u00abEstamos profundamente agradecidos por el apoyo continuo de la Asociaci\u00f3n AELAM a nuestra investigaci\u00f3n en LAM. La implicaci\u00f3n de los pacientes en la financiaci\u00f3n y su apoyo a la investigaci\u00f3n son pilares fundamentales que impulsan la traslaci\u00f3n de nuestros descubrimientos hacia avances tangibles en la cura de esta enfermedad\u00bb, subraya el Dr. Pujana.<\/p>\n

Cuatro categor\u00edas de la Milla 2024<\/strong><\/p>\n

La VIII Milla N\u00e1utica Solidaria Bomberos de Barcelona es una traves\u00eda acu\u00e1tica no competitiva que se celebrar\u00e1 el domingo 30 de junio a las 10:00 h en la Playa del Bogatell, junto a la Base N\u00e1utica. Los participantes podr\u00e1n escoger entre cuatro distancias: Media Milla (926 metros), Una Milla (1.852 metros), Dos Millas (3.704 metros) y Tres Millas (5.556 metros), con un tiempo m\u00e1ximo de 2 horas para completar la prueba. Las inscripciones se pueden hacer en la web de la Agrupaci\u00f3n Cultural y Deportiva de los Bomberos de Barcelona: https:\/\/www.acebombersbcn.cat\/viii-milla-nautica-solidaria-bombers-de-barcelona-2\/<\/a><\/p>\n

El precio de inscripci\u00f3n es de 15\u20ac, destin\u00e1ndose los fondos recaudados a la Asociaci\u00f3n Espa\u00f1ola de Linfangioleiomiomatosis (AELAM). Al final de la traves\u00eda, se realizar\u00e1 un sorteo de material y experiencias ofrecidas por los patrocinadores de la milla.<\/p>\n","protected":false},"excerpt":{"rendered":"

Se trata de la VIII edici\u00f3n de la Milla N\u00e1utica Solidaria Bomberos de Barcelona, que se celebrar\u00e1 el domingo 30 de junio en la playa de Bogatell (Barcelona).<\/p>\n","protected":false},"author":8,"featured_media":24408,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[184,292,371,281],"tags":[],"class_list":["post-24407","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-area-cancer","category-cancer-de-mama-cancer-2","category-procure","category-programa-de-mecanismos-moleculares-y-terapia-experimental-en-oncologia-oncobell"],"publishpress_future_action":{"enabled":false,"date":"2025-01-25 01:57:04","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts\/24407","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/comments?post=24407"}],"version-history":[{"count":1,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts\/24407\/revisions"}],"predecessor-version":[{"id":24409,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts\/24407\/revisions\/24409"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/media\/24408"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/media?parent=24407"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/categories?post=24407"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/tags?post=24407"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}