{"id":10528,"date":"2016-12-07T00:00:00","date_gmt":"2016-12-06T23:00:00","guid":{"rendered":"https:\/\/idibell.cat\/es\/blog\/2016\/12\/07\/exito-de-la-1a-noche-solidaria-por-la-investigacion-para-la-fibrosis-quistica\/"},"modified":"2020-05-20T09:34:46","modified_gmt":"2020-05-20T07:34:46","slug":"exito-de-la-1a-noche-solidaria-por-la-investigacion-para-la-fibrosis-quistica","status":"publish","type":"post","link":"https:\/\/idibell.cat\/es\/2016\/12\/exito-de-la-1a-noche-solidaria-por-la-investigacion-para-la-fibrosis-quistica\/","title":{"rendered":"\u00c9xito de la 1\u00aa Noche Solidaria por la Investigaci\u00f3n para la Fibrosis Qu\u00edstica"},"content":{"rendered":"<p>El pasado 1 de diciembre, por la noche, el Hotel Porta Fira de L&#8217;Hospitalet acogi\u00f3 la <strong>1\u00aa Noche Solidaria por la Investigaci\u00f3n<\/strong>, que reuni\u00f3 unos ochenta empresarios de L&#8217;Hospitalet y el Baix Llobregat con el objetivo de <strong>recaudar fondos para impulsar un proyecto de investigaci\u00f3n biom\u00e9dica<\/strong> que busca identificar nuevos genes implicados en la <strong>Fibrosis Qu\u00edstica<\/strong>, liderado por el Dr. Josep Maria Aran. <b><br \/> El acto, conducido por la presentadora de TVE Ana Grimau y amenizado musicalmente por Mari\u00ebn Group, cont\u00f3 con las intervenciones de <strong>Manuel Rosillo<\/strong>, presidente de la AEBALL, <strong>Gabriel Capell\u00e1<\/strong>, Director del IDIBELL, <strong>Josep Maria Aran<\/strong>, investigador IDIBELL, <strong>Celestino Raya<\/strong>, presidente de la Asociaci\u00f3n Catalana de Fibrosis Qu\u00edstica y <strong>Jes\u00fas Husillos<\/strong>, teniente de alcalde del \u00e1rea de Bienestar Social del Ayuntamiento de L&#8217;Hospitalet. <b><br \/> Tanto Manuel Rosillo como el Dr. Capell\u00e1 agradecieron a los asistentes su participaci\u00f3n y aprovecharon para dar a conocer las tareas que llevan a cabo el F\u00f3rum Empresarial del Llobregat y el Instituto de Investigaci\u00f3n Biom\u00e9dica de Bellvitge (IDIBELL) respectivamente. Por su parte, Jes\u00fas Husillos expres\u00f3 la clara voluntad del Ayuntamiento de L&#8217;Hospitalet de impulsar y apoyar la actividad econ\u00f3mica y de investigaci\u00f3n en salud desarrollada por ambas entidades, co-organizadoras del acto. <b><br \/> Paralelamente, el Dr. Aran expuso en clave divulgativa las causas de la Fibrosis Qu\u00edstica y los objetivos de su innovador proyecto de investigaci\u00f3n, a la que se destinar\u00e1n todos los fondos recaudados durante la Noche. Celestino Raya ofreci\u00f3 una visi\u00f3n m\u00e1s dura pero humana de la enfermedad, desde el punto de vista de los pacientes y familiares que reclaman, d\u00eda a d\u00eda, una cura para esta grave enfermedad. Para encontrarla en un futuro pr\u00f3ximo, ambos destacaron la clara necesidad de invertir en investigaci\u00f3n. <b><br \/> Los asistentes a la 1\u00aa primera Noche Solidaria tambi\u00e9n pudieron participar en la <strong>subasta ben\u00e9fica<\/strong> organizada para la ocasi\u00f3n, con art\u00edculos como una camiseta del Bar\u00e7a firmada por el jugador <strong>Jordi Alba<\/strong>, una litograf\u00eda original del reconocido artista <strong>Arranz-Bravo<\/strong>, y dos fotograf\u00edas de la serie \u00abArena\u00bb de <strong>Amparo Garc\u00eda<\/strong>, personalidades de Hospitalet de Llobregat que quisieron colaborar, de forma desinteresada, en este eventos solidario. En esta primera edici\u00f3n, el acto tambi\u00e9n ha recibido la colaboraci\u00f3n de la Asociaci\u00f3n Empresarial de L&#8217;Hospitalet y el Baix Llobregat (AEBALL), la Uni\u00f3n Patronal Metal\u00fargica de L&#8217;Hospitalet y el Baix Llobregat (UPMBALL ), Smart Space, la C\u00e1mara de Comercio, el Ayuntamiento de L&#8217;Hospitalet, el Hotel Porta Fira y la Asociaci\u00f3n Catalana de Fibrosis Qu\u00edstica. Y finalmente, el apoyo y las donaciones especiales efectuadas por las empresas <strong>Ferrer, Fundaci\u00f3n Grupo Sifu, Laboratorios Chiesi, Laboratorios Zamb\u00f3n, Disprone y Gutmar<\/strong>. <b><br \/> <b><\/p>\n","protected":false},"excerpt":{"rendered":"<p>1\u00aa Noche Solidaria por la Investigaci\u00f3n recaudar fondos para impulsar un proyecto de investigaci\u00f3n biom\u00e9dica Fibrosis Qu\u00edstica Manuel Rosillo Gabriel Capell\u00e1 Josep Maria Aran Celestino Raya Jes\u00fas Husillos subasta ben\u00e9fica Jordi Alba Arranz-Bravo Amparo Garc\u00eda Ferrer, Fundaci\u00f3n Grupo Sifu, Laboratorios Chiesi, Laboratorios Zamb\u00f3n, Disprone y Gutmar<\/p>\n","protected":false},"author":6,"featured_media":10529,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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