{"id":10216,"date":"2019-06-12T00:00:00","date_gmt":"2019-06-11T22:00:00","guid":{"rendered":"https:\/\/idibell.cat\/es\/blog\/2019\/06\/12\/nuevo-impulso-solidario-para-investigar-las-grinpatias\/"},"modified":"2020-05-19T14:37:03","modified_gmt":"2020-05-19T12:37:03","slug":"nuevo-impulso-solidario-para-investigar-las-grinpatias","status":"publish","type":"post","link":"https:\/\/idibell.cat\/es\/2019\/06\/nuevo-impulso-solidario-para-investigar-las-grinpatias\/","title":{"rendered":"Nuevo impulso solidario para investigar las GRINpatias"},"content":{"rendered":"<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\"><span style=\"font-size:11pt\"><span style=\"font-family:Calibri,sans-serif\">El CEIP Fray Alonso Fern\u00e1ndez de la peque\u00f1a localidad de Malpartida de Plasencia (C\u00e1ceres), junto con el AMPA del centro, ha impulsado una actividad solidaria para contribuir al estudio de las GRINpatias. El centro educativo organiz\u00f3 un \u00abbocadillo solidario\u00bb con el fin de recaudar fondos para la investigaci\u00f3n contra estas enfermedades, una tarea que en el IDIBELL lleva a cabo el grupo del Dr. Xavier Altafaj.<\/span><\/span><\/p>\n<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\">\u00a0<\/p>\n<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\"><span style=\"font-size:11pt\"><span style=\"font-family:Calibri,sans-serif\">Gracias a este evento, se recolectaron unos 3.107 \u20ac, que ser\u00e1n destinados a la investigaci\u00f3n de esta enfermedad minoritaria. A su vez, la Asociaci\u00f3n Cultural San Crist\u00f3bal, de la misma poblaci\u00f3n, tambi\u00e9n se ha sumado a la causa y ha dado un total de 500 \u20ac, que hay que a\u00f1adir a los que ya hab\u00edan recolectado padres y alumnos.<\/span><\/span><\/p>\n<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\">\u00a0<\/p>\n<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\"><span style=\"font-size:11pt\"><span style=\"font-family:Calibri,sans-serif\">Las GRINpatias son un conjunto de condiciones neurol\u00f3gicas que alteran el desarrollo del cerebro, causando graves problemas de discapacidad intelectual, hipoton\u00eda y epilepsia, y que suele afectar a pacientes pedi\u00e1tricos. La aportaci\u00f3n de estos fondos solidarios contribuir\u00e1 a acelerar el diagn\u00f3stico molecular y el inicio de un tratamiento personalizado para estos pacientes, con el objetivo de atenuar de manera significativa las consecuencias negativas de la enfermedad.<\/span><\/span><\/p>\n<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\">\u00a0<\/p>\n<p style=\"text-align:justify;margin:0cm 0cm 0.0001pt\"><span style=\"font-size:11pt\"><span style=\"font-family:Calibri,sans-serif\">Los equipos del Dr. Altafaj y del Dr. David Soto del Cerro, de la Universidad de Barcelona, tienen activa una campa\u00f1a de crowdfunding que recauda fondos para la investigaci\u00f3n de las GRINpatias: <span class=\"MsoHyperlink\" style=\"color:blue\"><span style=\"text-decoration:underline\"><a href=\"https:\/\/bit.ly\/2KSrWqo\" style=\"color:blue;text-decoration:underline\">https:\/\/bit.ly\/2KSrWqo<\/a><\/span><\/span> <\/span><\/span><\/p>\n<p style=\"margin-top:4.5pt;margin-right:0cm;margin-bottom:4.5pt;margin-left:0cm\">\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El CEIP Fray Alonso Fern\u00e1ndez de la peque\u00f1a localidad de Malpartida de Plasencia (C\u00e1ceres), junto con el AMPA del centro, ha impulsado una actividad solidaria para contribuir al estudio de las GRINpatias. El centro educativo organiz\u00f3 un \u00abbocadillo solidario\u00bb con el fin de recaudar fondos para la investigaci\u00f3n contra estas enfermedades, una tarea que en [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":10217,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[320,196,277],"tags":[],"class_list":["post-10216","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-area-neurociencias","category-neurofarmacologia-y-dolor","category-programa-de-neurociencias"],"publishpress_future_action":{"enabled":false,"date":"2024-11-12 18:39:00","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category"},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts\/10216"}],"collection":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/comments?post=10216"}],"version-history":[{"count":0,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/posts\/10216\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/media\/10217"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/media?parent=10216"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/categories?post=10216"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/tags?post=10216"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}