{"id":23208,"date":"2023-09-14T11:34:44","date_gmt":"2023-09-14T09:34:44","guid":{"rendered":"https:\/\/idibell.cat\/es\/?post_type=agenda&p=23208"},"modified":"2023-10-18T12:36:48","modified_gmt":"2023-10-18T10:36:48","slug":"iv-jornada-de-malalties-minoritaries","status":"publish","type":"agenda","link":"https:\/\/idibell.cat\/es\/agenda\/iv-jornada-de-malalties-minoritaries\/","title":{"rendered":"IV Jornada de Malalties Minorit\u00e0ries"},"content":{"rendered":"

Data<\/strong>: Dijous 26 de Octubre 2023
\nHora<\/strong>: Tarda de 16:0h a 19:h
\nSeu<\/strong>: Sala d\u2019actes de l\u2019Hospital Universitari de Bellvitge
\n<\/em>Organitza: <\/strong>Grup de Malalties Minorit\u00e0ries de l\u2019Hospital Universitari de Bellvitge.<\/em><\/p>\n

Des del Grup de Malalties Minorit\u00e0ries (MM) de l\u2019Hospital Universitari de Bellvitge (HUB), organitzem novament aquesta Jornada per compartir experi\u00e8ncies i les principals actualitzacions i novetats en l\u2019entorn de les MM. Desitgem que aquesta IV Jornada sigui profitosa per a tothom i contribueixi a la difusi\u00f3 de les MM i a millorar el maneig dels pacients amb aquestes patologies.<\/em><\/p>\n

Dr. Antoni Riera-Mestre. Coordinador del Grup de Malalties Minorit\u00e0ries. Hospital Universitari de Bellvitge<\/p>\n

PROGRAMA:<\/strong><\/span><\/a><\/p>\n

15:30 h Inscripcions i entrega de la documentaci\u00f3<\/strong>
\n16:00 h Taula 1
\n<\/strong>Moderen: Dra. M. Povedano. Servei de Neurologia. HUB; Dr. Xavier Solanich. Servei de Medicina Interna. HUB<\/span><\/p>\n

Angiog\u00e8nesi i teixit neuronal<\/strong>
\nDr. Eloi Mont\u00e1\u00f1ez. Grup de Malalties Sist\u00e8miques, Vasculars i Envelliment. IDIBELL. Universitat de Barcelona<\/p>\n

Aven\u00e7os en el maneig de la malaltia d\u2019Erdheim-Chester<\/strong>
\nDra. Gemma Rocamora. Servei de Medicina Interna. HUB<\/p>\n

Novetats terap\u00e8utiques en la telangi\u00e8ctasi hemorr\u00e0gica heredit\u00e0ria<\/strong>
\nDra. Raquel Torres. Servei de Medicina Interna. HUB<\/p>\n

Actualitzaci\u00f3 en la malaltia de Pompe<\/strong>
\nDra. Velina Nedkova. Servei de Neurologia. HUB<\/p>\n

17:15 h Inauguraci\u00f3 oficial de la jornada<\/strong><\/p>\n

17:30 h Pon\u00e8ncia magistral<\/strong>
\nModera: Dr. A. Riera-Mestre. Servei de Medicina Interna. HUB<\/p>\n

El model d\u2019atenci\u00f3 a les malalties minorit\u00e0ries de <\/strong>Catalunya. Estat de situaci\u00f3 i reptes de futur<\/strong>
\nRita Reig. Programa de Malalties Minorit\u00e0ries-\u00c0rea assistencial. CatSalut<\/p>\n

18:00 h Pausa per a caf\u00e8 i networking<\/strong>
\n18:30 h Taula 2<\/strong>
\nModeren: Dra. Joan Torra. Servei de Nefrologia. HUB; Dra. N\u00faria Llecha. Servei de Laboratori i An\u00e0lisis Cl\u00edniques. HUB<\/p>\n

Rean\u00e0lisi dels estudis gen\u00e8tics: quan, a qui i com?<\/strong>
\nDra. Ariadna Padr\u00f3. Servei de Laboratori. Unitat de Gen\u00e8tica<\/p>\n

S\u00edndrome d\u2019Alport: m\u00e9s enll\u00e0 dels gens<\/strong>
\nDra. M\u00f3nica Furlano. Servei de Nefrologia. Hospital Fundaci\u00f3 Puigvert<\/p>\n

La import\u00e0ncia de la gen\u00e8tica en el diagn\u00f2stic de les <\/strong>immunodefici\u00e8ncies<\/strong>
\nDr. Arnau Antol\u00ed. Servei de Medicina Interna. HUB<\/p>\n

Update en la patologia pulmonar intersticial<\/strong>
\nDra. Maria Molina. Servei de Pneumologia. HUB<\/p>\n

19.30 h Tancament de la jornada<\/strong><\/p>\n","protected":false},"featured_media":23209,"template":"","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}}},"tags":[],"class_list":["post-23208","agenda","type-agenda","status-publish","has-post-thumbnail","hentry"],"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/agenda\/23208","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/agenda"}],"about":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/types\/agenda"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/media\/23209"}],"wp:attachment":[{"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/media?parent=23208"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/idibell.cat\/es\/wp-json\/wp\/v2\/tags?post=23208"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}